Welcome to Rare Diseases Lesotho Association
We are a Non-profit Organization
We provide awareness on rare diseases
We are committed in helping affected people
Join us in helping those in need
Click the logo or scroll to get started

ABOUT US

Butterfly-Warriors, Together We Are Stronger

Rare Diseases Lesotho Association is a Non-profit Organization registered in October 2017 in accordance with the Societies Act of 1966 of Lesotho. The Organization assists all patients affected by rare diseases to access treatment and support care for improved health and quality of life. The intention is to facilitate and support advocacy and engagement between those with the ability to prevent, inter, treat and provide support care for patients and families affected by chronic and rare diseases in Lesotho.

Become Part of Something Bigger
Help us reach more people

RARE DISEASES

IBS-Irritable Bowel Syndrome (Awareness month: April)
Narcolepsy Sleep Disorder (World Sleep Day: March 18th)
Intracranial Hypertension (IIH Awareness month: September)
Rett Syndrome (Awareness month: October)
Complex Bracket of Allergy Syndrome (Awareness month: February)
Multiple Sclerosis (Awareness month: March)
Vitiligo (World Vitiligo Day: 25 June)
Huntington Diseases Huntington Diseases (Awareness month: May)

MEET THE TEAM

Seeng Nchai

CO FOUNDER

Co founder and mother to a baby girl with a rare kidney condition.

Nthabeleng Ramoeli

CHAIRPERSON

Founder of Rare Diseases Lesotho Association . After being diagnosed with Ehlers Danlos syndrome a rare genetic tissue disorder, she decided to start an Association that helps patients with rare diseases like her self.

Masethabela Maphotsoe

RESEARCHER

Genetics Researcher on behavioral/human genetics for honours and interaction between selected gene variants in depression & anxiety.

Mohlomola Mokhatla

RESEARCHER

Researcher on combating these microorganisms and how vaccines and antibiotics can be made, as well as identifying them for diagnoses bacteria and viruses.

WHAT WE DO
ADVOCACY

The amount of time spent in the office, six days a week.

NETWORKING

Number of t-shirts sold since our launch back in 2011.

AWARENESS

Number of coffees consumed per hour on any given day.

RESEARCH & SUPPORT

There are 6 different languages spoken in our office.

CONTACT US

For any questions or further information.

Physical Address
Qhoalinyana Street
Ha thetsane
Maseru 100
Lesotho

Contact Details
Tel : +266 57796134
Cell : +266 53885912

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